Tuesday, April 16, 2013

Free to Move

Dear family and friends,

This morning as I was walking down the hallway to Gary's room, I could see that his bed was empty and the sheets all off, so thought that he must be sitting in his chair.  As I got close, Gary came walking towards me, by himself with the walker, minus his GI tube, catheter, and IV pole.  What a wonderful surprise!  Much to his dismay, although he is very relieved to be rid of most of the added attachments, he's still limited to 1 cup of ice for each 8 hour shift.  They took an ultrasound of his new pancreas and kidney.  They said it would take about 20 minutes and that his room would be very dark.  I went to grab a cup of coffee and when I came back to the room, he was fast asleep -- I'm glad that it must not have been too painful of an experience.  I can tell that his pain level is considerably better then it has been.  Today was the first day that he started receiving some of his medication in pill form.  That made him happier, because he was given some water to take them with.  I can tell he's getting better because he's getting antsy.  He even read the sports section of the paper today and I tried to distract him for awhile by having him help with the crossword puzzle although he quickly lost interest and has a hard time finding what he would like to watch on TV (all 3 are things he normally enjoys doing).  We also reread some of the information about kidney and pancreas transplants that we had been given when we met with the transplant team our first time the beginning of June 2013.  Not expecting that the wait (he was listed the end of August 2013) would only be 7 1/2 months rather then the 2 years we had anticipated although hoping for sooner then 2 years, and with other things going on in our lives, we had only read it the one time in June.  We are slowly finding out what changes and restrictions we will encounter.  When I left, this afternoon, he was going to be laying down again, and as soon as the last IV bag was empty, they would be taking out his central line and putting a new IV line in his arm.  From my understanding from one or his resident doctors, if all continues to go well, they will probably start him on a liquid diet tomorrow.  The resident doctor also said that he is really doing well -- that he's on the fast track, part of it may be because he thankfully has never had to be on dialysis and part of it may also be the good match of organs he received. Some requests for prayer  and Thanksgiving include:

1.  Thanksgiving for how well Gary is doing already.  That has been very encouraging to see.

2.  Thanksgiving for family, friends and our church family and many people we don't even know who are praying for us.  I often wonder what people do without the Lord, their family, their friends, and their church family.

3.  Continued prayer for the family who gave Gary and us this wonderful gift.

4.  Patience for me as I have been getting frustrated feeling that we are not getting all the knowledge and training we need.  Sometimes it feels like it is 2nd nature to the staff and that they forget it is totally new to us.  At times there also are communication barriers which don't help. 

5.  I want to there when any training occurs, but, no one seems to know when things will happen. Wisdom to know when I should be by Gary and when I should be at home taking care of myself and spending time with Peter, Andrew, and Stephanie.

6. Patience for Gary when he's uncomfortable, in pain, tired, and thirsty and patience for me in supporting him.

Thank you for your continued thoughts and prayers.

Love,
Nelly and family

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